Im Home!!!!!!!!!!!!!!!!!!!!!!!!!!!!

8
Lell's picture

Well guys im HOME!!!!!

As you know went in st james leeds on tuesday at 6.pm
what a experience that was no beds on ward 92 sent to 23 what a hell hole
that was
but any ways morning came wednesday woke up late nurse's had not got me preped for 9 o clock surgery so surgeons going mental
no time for a enema so straight to the bath a quick cat lick then shouted at because i said i was in a tissy because it was literally 5 mins after been woke up they where pushing me a bout come on come
i said hang on ive only just been woke up not my fault your running late

the reply was
well it's not as if you was scheduled for surgery was it!!!!
you was a last min push me in job

i wanted to shout and cry because i felt a burden

any hows got down to surgery no pre med because there was not enough time for that
so went down at 9.am so 3 1/2 hrs down in theatre and 4 hrs in recovery because my blood pressure was so low they were worried
hubby was frantic they never even let him know i was out of surgery so he thought something had gone wrong
any ways for the rest of my stay i stayed on ward 23 and treat like i was nt there

i dropped my tables i ended up crawling on the floor for them and they just walked by me,i was stuck at the wrong side of my bed no buzzer and a cafater attached to the side of the bed so couldnt move to the other side as they turned the lights off and said nite all

i was sat for 1 hr crying because i couldnt get back into bed until i woke a patient and she buzzed for me then they came to help me back into bed

i had to go to the loo for the first time on my own no one helped me and i nearly passed out then the same for my first bath on my own
its been hell i cried so much i didnt think it possible to have so much water in your body

people coming and going for a day ops then gone again within 4 to 6 hrs

i had no one to talk to about what i was feeling or anything i was so scared and lonely but any hows came home sunday afternoon

the op went great aparantly no complecations bladder and bowel all okay
consultants well chuffed they also took some what they called healthy tissue and sent for exam get those results on the 18th september at york if all okay then no radio or chemo (god willing )
i have had staples and i look like a cornish pasty top from under my bust line down to my nether regions it looks awful
but it will get better as it ages i should emagine
its the taken them out i am now worried about (lol)
but the biggest laught was when they said they was confused when they went in for the ovaries (lol) they could only find 1 (rofl )

they had never told me that they had removed 1 when i had a eggtopic pregnancy some 20 years ago (lol) no wonder ive been a bitch hubby said

but consultants could'nt believe how quickly i had got myself up and about and they even congratulated me on a remarkable turnround

if they only new how ill i felt and i just wanted to get home because it was the worst experience i have ever had to deal with in my entire life

i will never again go on ward 23 i dont care how desparate i am infuture i have never felt so neglected and abbandoned as i did those few days i was there

but at least it's done with now and i am home
hubby been an apsolute star he was there every day

Tags: Womb (uterine) cancer, ache, home, miserable, pain, radical, tired

You must be so relieved!

pheonix's picture

What a terrible experience at a time when you are at your most vulnerable. I hope you will consider bringing your experiences to the attention of the hospital, because unless someone is told then nothing will change.
I have only ever been into hospital three times in my life. The first was 24 years ago when I had my first daughter by elective caesarian (she was breech all the way through!)and had a general anaesthetic. The second time was 6 years later to have my second daughter by 'normal' delivery, and then day surgery on 29th July to have my melanoma removed under local anaesthetic. I hated it when I was made to feel like I was a 'burden', it's not by choice that you are in hopsital! I am now waiting for an 'urgent' referral to hospital for further wide excision of the original site,plastic surgery plus Sentinal Node Biopsy from my groin. I've waited 3 weeks so far to hear when my 'urgent' appt is going to be and the more time I have to think about what they are going to do and the thought of being at the mercy of the hospital is making my courage slowly disappear!!

I'm so glad that you are home and can start your healing and recovery surrounded by familiar things and people who actually care about you. Take good care of yourself

pheonix

you must be relieved its behind you

cazje's picture

What a terrible experience you've had, the only good thing is its behind you now, you can now have the tlc from your friends and family (people who care ) in your own home for the rest of your recovery. Good luck with your results hugs caz

you poor thing xxxx

Alison's picture

Hi Lel, i really do think you should bring what happened to the attention of PALs, i know you may feel that its over and done with, but it might just prevent some other person being treated in the same shameful manner. i am so glad your home and roll on the 18th of september for your results, got everything crossed for you xxxxxxxx
lots of love
Alisonxxxxxx

Welcome back

Kate2003's picture

Lell my sweet
What a nightmare ... I can't believe what a horrendous time you've been having. But thank God it's all over safely, and the operation was a success. You really do need to complain about the way you were treated - it's totally unfair that staff can be so inhuman and get away with it. I'm beginning to believe that for every 'angel of mercy' there are at least five vindictive little demons with bad PMS.
But hooray - it IS over now, and you can concentrate on getting better - with your loving family and friends around you. Your inimitable sense of humour seems to have bounced back already - you've managed to make an entertaining, amusing and very moving blog out of such a horrible experience.
And of course all your friends here are so glad to have you back - we've all missed you.
Look after yourself - and let your family look after you too.
Hope to talk soon.
Lots of love, Kate xxx

Hi Lell

Penny's picture

Well that's damned Ward 23 and don't they deserve it! It sounds like Hell, and I'm glad you were strong enough to claw your way out. It' horrible when there's no-one to notice that you are struggling, and it sounds appalling that no-one helped, and they were so rude. I know they are overworked, but that certainly isn't your fault, and they wouldn't like it if their relatives were treated like that. Sounds like poor management and everyone unhappy with the place. Might be worth contacting the hospital and making a fuss when you feel up to it.

The Cornish Pasty comparison tickled me. Only one ovary? The fact that they neglected to tell you previously shows how we were all treated only a few years ago - zero communication. I made sure with my new hospital that I get copies of all correspondence, and they have been brill with giving me a copy of their report - something I never had before.

Finally of course I'm wishing you very very good luck with the lab results. It's sounds very very good with no involvement of adjacent organs anyway, so fingers crossed.
Lots of love xxxx Penny

Lell

Ruthless's picture

Thank God you're home. I can't think why you weren't in recovery ward for a day or two. Even the ward I started in was better than Ward 23. I thought you were scheduled for surgery. You were told to be on hand for an earlier call, but I thought Tuesday was the date you were originally given. Surely they turned the lights on and did breakfast for everyone at 7 ish? Don't the night staff do that before they go off shift.

I think you should spend some of your convalescence in writing to the hospital and complaining in the strongest terms. Tell you what, I'll send a PM.

I had staples, and they took them out with a giant staple remover. Then I got an infection in the large scar. It happens sometimes, but not always, so maybe I had the infection for you.

Take care, sleep as much as you can, but make sure you walk about a bit as well so you don't get DVT. Keep wearing the stockings too.

love

Ruth

What a time you have had.

EJ's picture

What a time you have had. That is just way too much drama and trauma.... are the staff totally blind and stupid in that place?
Glad to hear you are home, in one healthy (albeit cornish pasty themed) piece.
Take care of yourself and enjoy the love and care of your family and friends, Love EJ x

Hi guys thanks!!! it's great

Lell's picture

Hi guys thanks!!!
it's great to be home and in amongst friends and family again and you guys i missed so much to talk to for reasurance
the surgeons and theater staff was FANTASTIC!!!!! in every way but ward staff well to be honest i would not recomend that ward to anyone
in amongst them there must have been three decent staff members Grace, Amanda & Barbara was fab the rest well you know

anyhows back home feeling still rough as a badgers bum (lol) but i am resting now !!! and even though not quite right in myself as yet
i am feeling not to bad and i have stopped crying thank gawd!!!!
but i have ache's and pains and feel like i am ready to burst feel full all the time and sick and cant get off the loo (lol)

but at least not bunged up any more so all that pain is subsiding due to wind etc (lol) not nice subject
any ways guys will be on the phone tomorrow to get something done about my stay there on 23 and hope they will sort it out for any future patients it has to change its just not fair for people to feel like i did so onwards and upwards guy's and im back fighting as usual and thank gawd for my sense of humor (rofl )

will let you guys know what they say tomorrow when i have been in touch with them
thanks Ruth for your suggestion will use it most deffo

talk soon guys

love
lell
xxxxx