Members' blogs

Member blogs

Members' blogs


12
treeze's picture

hi every one back again.the last few weeks have been very hard. i ended up in hospital again after my last chemo even though i had five days of the injections my white cell count dropped & i was neutropenic again so five days in hospital on iv antibiotics.

11
poppyanne22's picture

My Husband has just been diagnosed with lung cancer which has spread to his spine. Its been a nightmare. he's just had a biopsy so waiting for those results plus waiting for radio therapy to start on his spine a week Monday. Its totaly consumed our lives at the moment. Plus to add to the misery my poor old Dad has been diagnosed with terminal bladder cancer !!

11
Ichibon's picture

I know I won't get all my dates right on but I need to catch up on the latest before too much more happens.

11
Rooibus's picture

I just found out that my mother has just been diagnosed with Oesophageal Cancer. This the second time I will be supporting someone going through cancer. Went through the shock again. I started looking for answers on the Internet immediately. The Internet is a very scary place to look for answers sometimes because the info is presented so matter-of-fact-like.

10

hi all just a blog to say a big thank you have helped me to keep me happy . as you all know i a very happy happy lady as thats the ways i am but all of you have keeped me happy to . some days on chemo i have had dark days but i pop on here and find some one to talk and i fill great again .

10
jonnie5's picture

Today I am feeling very tired,even after a year the after effects of the radiation are always there,but the doctors said it would be a long hard road as your body has been put through hell and back.

10
10

We got him at 8 weeks old, I still remember him with his sister at the breeders, two little Golden Retriever puppies with cheeky faces and wagging tails, imploring us to love them. Didn’t need much persuasion on our part but we couldn’t get both so we went for ‘Ollie’.. He was our wedding present to each other.

10
10
texasrose's picture

Hello to Everyone

Would like to say many thanks to support that has been sent this week to me.

It has been one very busy and down week for me but well can now only go up now (better had).

10
habubrat's picture

I'm assuming this will be different for you guys in the UK in particular with socialized medicine, which we don't have in the US. We had an appt for consultation at UC SF (University of California, San Francisco) for Oct 28th. In the mean time I had decided to that we should go to the leader in treating Myeloma which is in Little Rock, Arkansas.

9
pheonix's picture

Is it just me or are there others having similar problems?

9

My mum had her PET scan on Monday and the lung cancer nurse rang yesterday to say that it's 'inoperable', basically explaining that it's attached to 'central nodules' (in other words, they can't remove the whole thing). They said she can have chemo, but to be honest she is quite anti-chemo as she doesn't want to be made ill when the prognosis is so poor anyway.

9
Les's picture

Well its what we all dread and hope never happens but looks like Im back on the rollercoaster again!

Havent felt well for weeks, and couldnt exactly put my finger on it but as we all know we know our own bodies pretty well.

After much harrassment from members of this site ( who will remain unamed!) lol I made an appointment with my gp yesterday.

9

First cycle yesterday - FEC. So one down, 5 to go!

Thanks for the lovely comments & messages with advice. I read one of the messages too late! Threw up once yesterday... think I ate a little too much for lunch and left one of the anti sickness tablets too late.

8

hi everybody i am new to this and i have had non hodgkin and hodgkin and its now 3 times i have got it and its really doing my head in and i dont know were to turn now . If you can help me in any way it would be nice to here from you.

8
KateG's picture

I have been away for a week and when I returned the site had changed! Some, much wittier person than I, had previously remarked when the chat room changed that they had found themselves in the "Twiglet Zone". So... I shamelessly 'borrowed' this fabulous tag. It is amazing how much one can miss in a week out of the "What Now?" loop. I have been catching up on various forums and blogs and come across yet another 'Impostor' problem.

8
Penny's picture

no - not "up", just that this afternoon I have finally put in motion a complaint to the NHS about my mis-diagnosis, mistakes over incomplete treatment, neglect to mention positive factors, and failure to forward my old scans to my new hospital.

8

The problem with hospitals is they tend to be filled with sick people. You can’t guarantee you’ll be in with a good crowd and have a good time…
So wrote Joseph Heller in his satirical anti war masterpiece ‘Catch 22’, but in contrast I met some wonderfully humorous and friendly people in hospital.

8

WELL...By 12pm today I had done 30 minutes of salsa, been to the hairdresser and supermarket, made a cauldron of fresh mushroom soup and written half an essay on terrorist incursions into the Niger Delta (which I shall have to revisit in a more normal state as it is doubtless a load of frantic drivel!)

Your tips

These blogs are tips that members have submitted. If you have a tip you'd like to share with your fellow members please send us it through this cancer tip form and we'll try and get it up here as quickly as possible.

-------------------------------------------------------------------------------------------------------------------------------------------------

Treatment and anxiety

Claire's picture

Tip from Sam

My partner is due to go for her second chemotherapy. She seemed OK until yesterday when she started to become anxious. Today the anxiety got worse and she became very panicky. I was getting worried so I called the NHS out of hours service and the doctor prescribrd diazepam. It did help a lot, stopped her panicking and greatly reduced her anxiety.

Claire's response

Routine Medicines?

From Joanne Hey:

Im not sure if anyone else found this.. but when you get diagnosed, the docs never mention (ahem..) the bowel problems and heartburn!! A tip would be to make sure you have been prescribed with either Movicol (eww) and some neutralisers for the heart burn.. its caused by the sterioids and i found it irritating. A good idea would be for the nurses to list the available mediacation for such problems. Not sure if this is a problem for anyone else but ive spoken to a few people and they all say the same :) 

Feeling angry

From Matt:  Do not get angry or start looking to blame others or wonder why your GP didn’t refer you earlier. Who are you going to get angry with your anger and similarly the anger of your loved ones can only affect you and your family. Anything that detracts from your ability to come to terms with the cards you have now been dealt can only have an adverse effect on you and your treatment.

Nausea and medication

From Alison: I found I didn't like taking my medication in hospital before some food, so I used to go in each time with a packet of digestive biscuits, I found I could manage these even when I felt a bit sick.

Accepting help

TIP4 - from Alison

"Take up offers of cooked meals from relatives, especially if you have a family and partner who works, this will give you more quality time at home for the first couple of weeks after surgery."

 

Jean's answer:

Aromatherapy

TIP 3 - from Penny

Feeling unwell

Claire's picture

Tip 5 from Alison

"If you feel in any way not well, or something doesn’t feel quite right, try not to be paranoid, get it checked out or ring your nurse."

Response from Claire

It is quite common when you have cancer and having treatment to feel anxious about any ‘odd’ feeling that you have. People’s reaction to cancer treatments can vary greatly so it would be easy to blame everything on the treatment.

Write your questions down

Claire's picture

TIP 2 - Our second tip comes from two users who sent us the same tip. Those users were Liz and Alison.

Benefits








TIP 1 Hi there and welcome to the first of our member tips. Today's tip comes from Alison.



"Macmillan offer an excellent service on benefits that you may be entitled to, they also have grants as well (I think it is all means tested though)."


Video blogs

So far, we have no one keeping a video blog...but we'd love you to start.

If you would like more information on how to start a video blog, please send cancerbackup a private message or let us know through the 'contact us' section at the top right of the page.