Help on this site

How lovely. Isn't this what this is all about. One gets some wonderful happy times if one is able to seize the moment and enjoy.

We're so glad that the site is helping - it's really important to know, isn't it, that there are people who know exactly how you feel and what you are dealing with. Your evening together sounds lovely, and, as you say, it's times like these that make us aware of how precious true relationships are. xxx Penny

Hi,
Such true words. Today I was in my kitchen watching Harry in the garden, he had all our bikes out and was adjusting saddles, handlebars, oiling brakes, fixing lights, getting the kids to test ride them, it all looked so normal, he looks so well, and I was able to breathe a sigh of relief that for now some normality has come back into our lives. Days like this make you soon forget that this time last week I was feeling scared and felt that our lives could and would never be the same again. So tomorrow weather permitting, we are all five of us off on our bikes to a hog roast near the beach, may have to push then home later though!! Bravo to us all xx

It was my hubby birthday today and we had much better day today than last year.

Last year 's birthday was day after he had operation for total penectomy and groin disection. For the kid's sake really, I managed to get a cake and some helium ballons, to take into hospital for him. And a wicked Doctor Who card from our son... when you opened it up it said... "It is your birthday ...you must celebrate... or you will be exterminated...." so appropriate..!!

This year..today.. I took him to a pub for dinner and a coupla beers. And then tonight... we had been invited to a wedding reception with a live band. We had little dance together... and we both looked back on what had happened in the last year. We have come such a long way... And we have the future to look forward to now...together with our children...

Best wishes to all. I have made some wonderful friends on here, thank you so much for all your support...

JG XXXX

Hi Triplets and all

I am s pleased that we are having some peaceful normal times we need them to gain the strength to carry on the fight.As I am writing this Bob is watering the hanging baskets outside, he couldn't have even got outside last week. Dosn't it make you appreciate things and life gets into perspective

Love to you all friends

Tina

It's so good to read about these oases of peace and normality. We, too, had a wonderful, peaceful wedding anniversary celebration on Thursday, where we were just happy to be at home with a couple of relatives. We even made tentative plans for a holiday, and Markus was talking about having a caravan in Yorkshire where we could go more often when I retire (if ever!). Six months ago I was afraid he might not be here now.

The future is still uncertain, but we enjoy every day that we can. And we hope. The support and friendships found on this site have made me, at least, less isolated and more able to cope with the situation, and Markus has the benefit of having a less emotional wife ( though I think he does get a teeny bit jealous that I spend so much time on here)

Thanks to you all.
Pat

Yes, Pat is right about the future being uncertain, but I am still having some wonderful days and strangely can be very happy - despite the fact - or maybe because - I now shouldn't be here. What we have each been through does put things into perspective. It's also true though I'm afraid about the site. One or two others of us have got partners who are a teensy bit jealous of our new What Now friends.... xxx Penny

Oh err....coming Dear...LOL

Tina,

As others have already said - it is really nice of you to record the things that we all experience in our "Quiet Moments"

Our personal situations allow us to realise, what so many others in today's hectic world miss, which is;

"How Precious and Special Each Day Really Is"

Love to you all,

Matt

Hi, I would agree with everyones comments; through this site and the friends who have helped me over the past weeks and months of treatment I would like to say a big 'Thank You' so very glad I found you all.

I am now a much more peaceful person to live with and with my husband I enjoy each and every day, just being together here in the beautiful forest and appreciating all this nature, and planning for our future (hopefully). My friend sent me an e-mail with these words in it, I would like to share them with you.

Life isn't about waiting for the storm to pass...........It's about learning to dance in the rain.

So true. So folks, next time it rains, lets see you all out there dancing!

Love and hugs, emma.xxxxxxxxxxxxx looking forward to the pic's!!!!!!!!!!

Emma,

I certainly agree with the message your friend sent , however today it has been raining all day but at 0830 it was dry and a couple of mates asked if I fancied a cycle ride, within ten minutes of setting off it was peeing down - an hour later we stopped at a country park for tea and cake, then returning home still in the rain.

So I didn't dance in the rain I cycled about 30 miles (in shorts),got absolutely drenched ..........but you know what..................... IT WAS REALLY FANTASTIC!

Matt

Yes, we learn to appreciate everything, not moan about little things and really love what we can do when we shouldn't by all accounts have been around to do it! I camped out in a friend's garden for first time in years on Sunday night, and just stood and looked at the amazing stars (which we don't get in a city because of "light pollution"). They were so fascinating and eerily beautiful. The cycle ride sounds fantastic Matt - but - what? only 30 miles? Slipping a bit, down from 50? (Teasing - 30 would take me a week) xxxx Penny

Hi All

30 miles Matt wow. I can't sleep tonight so I am sat up watching the Liverpool match on TV. Liverpool are winning 2-1 at the moment so all is well. Bob and I went for a little walk last evening around the local Marine late stood and watched a stunning sun set, got some photo's, lately I am feeling a lot more positive about things and a lot calmer.OH YES 3-1 to Liverpool. Sorry slight distraction. Really though I can't say it enough how being in contact with all you lovely people helps.

Bob is feeling so much better at the moment it's hard to believe that he has this horrible disease,

One of the side effects he has is really sore dry feet and hands does anybody else have these problems.I massage creams into them this does help but the dead skin just peels away. It leaves him with baby soft skin underneath, wish it was on my face I would look 10 years younger it's like a chemical peel you would pay hundreds for.

Well I suppose I should go now

Love to you all
Tina

xxxxx

I too cannot sleep lately, actually not been to bed any night for the last two weeks much before 1am, good job there is no school! Tina remind me of where you live, I am in Kent. This week has been ok, would have been nice to get away for a few days before we step back on the rollercoaster next week, but everything either booked or too expensive. Trouble is days like now, Harry is actually doing a gardening job, he looks well, full of energy, you almost forget what is going on, get lullled into a false sense of normality, if that makes sense? I suppose we should be at least grateful for that and just make the most of it! Well its abit overcast but warm, so hopefully when he gets back we can go out somewhere this afternoon. Hope you are all having a good day xxx

Hi Triplets

I live on the Wirral its the small peninsula on the opposite bank to Liverpool accross the Mersey.

It has some lovely spots I don't know if you are into Golf but the British open was held here at the Royal Liverpool in Hoylake a couple of years ago.

Glad to hear that Harry is well enough to garden good luck with the chemo I do hope it can get started as the sooner it starts the quicker its finished

We go Friday for scan very mixed feelings scared that the results may not be as good as wished but hopeful of positive news.

Look forward to hearing from you soon

Love to you all

Tina

It was You and Yours. A caller was irritated by people saying they are managing, often with enough money to manage with. He said "There are a lot of B & B's in Dorset empty this week."

I go on spec, show up at the railway station and ask a taxi driver if they can find anywhere to stay. They always can. It's because the more hotels they find customers for, the more taxi rides they sell.

It's the opposite of booking.

I had a touch of normality. Now my chemo has finished for 8 weeks, I feel much better. The dog got me out of bed to let her out into the garden at 2.am. It was quite hot in the night. Then I finished "Spy Sinker" and turned the light off at 4. When she got me up this morning, I made her wait until 7 am. Yesterday I was awake at 5, and felt great until lunchtime when I faded for an hour or so.

It is progress of a kind. Every day is a treasure, and needs isolation. If it's bad, don't let it spoil the next one, and if it is good, save it up and enjoy it. I am happy and feel OK. What more could I need?
Ruth

Hi Ruthless you are a credit to this forum

I hope that you continue to have good days and your dog dosn't tire you out too much

Speak to you soon

Tania how are you and Paul

Love to all

Tina

Hi Gals

Just a quickee as have been feeling bad not writing for a couple of days - all is ok - will write more tomorrow when I am at work and have some more time - just wanted to touch base and say Hi to all and thanks for the "how are you and Paul's" - xoxo