How Society Sees Us as Useless Once We're Terminal

How Society Sees Us as Useless Once We're Terminal

Not sure if Thomas might want to move this to a different category! Nevertheless, it's something that's come up discussing another topic with pusspins. I was sacked as soon as I told one of my bosses I was terminal: couldn't wait to get rid of me, and hadn't wanted me back at work when the doctors' mistake was revealed. So, as we are what we do, who am I now? I'm still going nearly a year on, and have just asked to do a few hours voluntary work doing one of the jobs I did before (and did well). I certainly wouldn't have the energy to do a full day, but I'd offered a few hours per week covering other people's lunches. Offer declined - Health & Safety/insurance.

So, I wanted to start a forum where we terminal people, whom Society has written off, can boost our own self-image, and also point the way for others feeling marginalised or excluded.

Yesterday, I went for a walk and took some photos and emailed them to a guy called Peter who is passionate about the History of Workhouses (www.workhouses.org). He had a gap in his information about the Nottingham workhouses, and my friend Sophie introduced had me to the subject of "The Iron Hospital". We located it on one of our driving-round-unlikely-locations-for-day-trip outings, and I subsequently did some research at the library. This morning I looked at the site, and Peter has posted up one of my photos and added the info. It has really cheered me up.

What have other terminal people experienced? How have you "opened another door" when the old ones are slammed in your face? Anyone got any stories, and any tips for the rest of us to stay useful, stay meaningfully active?

Lots of love,
Penny

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Penny


YOU'RE NOT USELESS

Penny...you're wonderful. I have read many of your comments to people and I find it difficult to add anything after them because you say it all. You are an inspiration and if you do nothing all day but write on here then your time isn't wasted. Your words offer comfort and support and at the given moment humour.

Keep circling the drain.

Love and Hugs

JG XXX

P.S.

I love history so will be taking a look at the site you refer to.

JG

Very very kind of you JG

to say that. I think I just needed to get things off my chest this morning. That's the great thing about here. I find the degree of self-analysis required for writing these entries does help me think things out. Things could be a lot worse (little voice in my head there, but I'm going to ignore its cynical aside). Yes, I've always enjoyed history - social history, rather than the wars-and-politics version we had at school. Thank you JG. How's your husband doing?

PS Looking for something else later, I came across The Wellness Wheel diagram, in connection with another degenerative and terminal disease. The hub has the phrase "There are healthy ways to live with disease", and is tyred by the categories "Physical", "Emotional", "Intellectual", Spiritual", and "Social". ie each of these categories needs some measure of satisfaction in order for us to cope mentally with the remaining time left. Think I'm going to scribble a list, and then count my blessings - and address the categories that are weakest.

xxx to everyone. Penny

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Penny