I don't know what to think
Posted on: Wed, 08/10/2008 - 21:04
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I don't know what to think
Hi all,
This is my first time on this site, it has come to the point where I need to talk to someone.
My husband was diagnosed with NHL in his abdomen area back in March and has had eight chemos with retuximab. He was visiting the doctor for months and not getting any help, the GP told him that he is too young for cancer, quoted a harmless stomach disorder and told him to take some painkillers. We eventually had a CT scan followed by a bone marrow biopsy, which showed he had a large high grade aggressive NHL tumour.
We were told at the recent hospital appointment that the last CT scan has showed that there is still an abnormality there which most likely will be low grade disease. This news has plummeted us into depression, what does it mean? Does it mean that he will never be free of cancer because this low grade tumour will rumble on forever?
I look forward to hearing from someone.
Hi Rainy,
Sorry for your recent health developments and that you are feeling blue, which is perfectly understandable. You will find people on this site who will embrace you and hug you through it all. Both caregivers (such as me) and those who have cancer themselves. They will sometimes offer things that have worked for them or that they have read about. I use alternative therapies in conjunction with traditional intervention. Some say its hooey. You will find all kinds here, but you will find friends. Keep reading, jump in, get involved as you feel comfortable. Keep the faith, stay strong, go on some long walks and be sure to LOOK around as you do. Dive in, roll up your sleeves, but above all know you are not alone. - Lori
"Life isn't about waiting for the storm to pass. It's about learning to dance in the rain."
Can't help advise you I'm afraid as my experience was different, but someone will help at some point, it's a fabulous forum for support and advice.
Good luck to you and your hubby, keep popping back and I'm sure you'll get some reassuring news before too long.
Best wishes
Dave X
I mean AFTER they told what it most likely was? Have they arranged for more tests? Have you got an appointment to see the specialist oncologist again? I can't understand why they have left you with partial information like this. Do you have a Cancer MacMillan nurse organised for your husband and yourself? I ask because not all hospitals seem to refer patients automatically, and they have great resources and are able to exaplin things and fight a bit on your behalf if you are struggling to grasp what is happening.
Not at all surprised about the gp - we are getting sheafs of such unnecessary delayed diagnoses for the UK on here. Wishing you all the ver best, and please keep us posted. xxxx Penny
Penny