Insulinoma - malignant - metastatic spread to liver
Posted on: Sat, 01/03/2008 - 18:47
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Insulinoma - malignant - metastatic spread to liver
I was diagnosed with a metastatic insulinoma in March 2007. Since then I have had two distal pancreatectomy's, splenectomy and lymph node resections. April 2007 and September 2007. The surgery was gruelling and complicated by MRSA, pancreatic leak, sub-frenic abscess and a pleural enfusion. I also now have type 2 diabetes. At 46 years old with three children I have had a grit determination to get through no matter how painful the treatment. In November 2007 I was given the all clear. This was very short lived as last week (8 weeks later) the cancer has spread to my liver. I will need to undergo further surgery to remove the new tumour... not something I am looking forward to at all. But whatever it takes to survive.
Has anyone else had a similar experience? How did you cope?
I would also like to hear from anyone with secondary liver cancer? What treatment was used? What was the outcome?
Hello Enola, I see you have not had any replies, I won`t be much help! My Dh was diagnosed in March with bowel/liver cancer. The primary on the bowel was removed in April. He starts 3 months chemo next Tues, after that he goes up to Kings for liver resection, followed by a further 3 months chemo! We have a long way to go, they say it is not curable but treatable. You sound as though you have been thru hell, so I hope with all my heart you now have some luck. We too have children, 10 yr old triplets!!
Firstly I wonder if Enola's topic was inheritted from the earlier website as the given date is 1st March. This may be why no responses were logged, as there weren't all that many site-users at the beginning.
Secondly, and most importantly, I want to wish you and your husband the very best of luck with the start of his chemo next Tuesday. This is a really long haul, isn't it, but at least they are saying that it IS treatable. Lots of love xxxx Penny
Penny
I am amazed by your strength, you seem to keep up with us all, lots of love to YOU xx
I became so frustrated at not finding clear information on inusulinomas that I created a new support website for the UK. It is at http://www.insulinoma.co.uk The idea is to create a support community. It is a rare condition and it feels very isolating not to be able to share thoughts and feelings about have an insulinoma. Log-in to www.insulinoma.co.uk and let's support each other and learn more about this rare neuroendocrine tumour together.
wish you all the very best with your treatment, and also with the website. I can imagine how isolated you feel. Even one person the same as you makes all the difference. xxx Penny
Penny
Hi Enola Just want to say that my husband has secondary liver cancer (it started with the bile duct) and has been receiving chemo which has helped shrink the tumours the doctors cannot operate on his liver as its surrounded with major veins but the doctors are pleased with his progress and have said the chemo will prolong his life which is the most important thing so please keep positive Lilianx