myeloid leukemia

HI i would just like to say i total under stand were you are coming from my mum had a.m.l went through treatment had 11months free and then it came back and all the time i tryed staying strong for mum,dad and my family but really inside i was hurting so much i walked around for days asking why us why mum and them sadly i lost my mum on 21st october 2007 which i still cant beleive she has gone which is why i understand you and how hard this is for you i must ask how is your mum doing ?.and how are you coping now all i can say to you each day is a new day and please take time out for yourself and i wish you all the luck in the world and if you want to chat and if i can help i will

Many thanks for your e-mail im really sorry to here about your mum. My mum has just finished here first 10 day course of chemo and she really is not well, she in so much pain and its breaking my heart im just not coping at all with it im back at work but i just dont want to here.

There's very little consolation that anyone can give to make you feel better when you're watching someone you love go through something as painful as cancer and chemo however you are cetainly not alone with your experience. My mum was diagnosed with ALL a year ago and has spent the last 12 months undergoing chemo and a stem cell transplant. Unfortunately despite her courage and strength we were told last week it had returned. That isn't meant to scare you as everyone's outcome is different. However without doubt this has been the most difficult and painful experience of my life. I sympathise for anyone who has been through something similar at any level.

Feeling angy, alone and distracted is neither unsual or something to be afraid or guilty about. I've been there and am still struggling to come to terms with her imminent loss.

If you need to talk let me know, my thoughts and well wishes are with you and your mum xx

hello mel my hubby has aml a very rare sub type he is 47 i am 44 we have a daughter who is 4 hubbys had 3 lots of intense chemo and is hoping to have a bone marrow transplant at addenbrookes if youy would like to talk please contact me ok juliexx

hello hope u dont mind me contacting you charmin i really feel 4 you loosing your mum i lost my dad 9 years ago and ive only just come to terms with it and now my hubbys got aml hes due to have a bone marrow tansplant do u mind telling me if your mum had 1 i still cant believe hes got it keep thinking theyve made a mistake but i know they couldnt have hes had 3 lots intense chemo and went into reminsion after the first lot, his sister is a match which we were delighted about so weve still got huge mountain to climb hope you reply jools

Hello,

My mum's at Addenbrookes she's got AML and has just started a second round of chemo.

It's a rollercoaster but I try to be positive as much as possible.

All the best,

Ros x

hi ros my hubbys goin onto ward 10 at addenbrookes on 1st june for his bone marrow transplant he has had 3 lots of intense chemo i may meet you there his sister is going to be his doner which is great because she is a match. how is your mum is she in reminsion or still having ongoing treatment it is very hard ros keep positive as much as you can they are a brilliant hospital your mum is in the best hands good luck x

Hi Jools,

Lovely to hear from you.

Sounds like my Mum's in the same ward your husband will be in. She is in her second round of chemo, she didn't get remission with the first round (she was on the AML 15 clinical trial but it didn't work for her), so with this one, they're stepping up the intensity. She's very level headed about it all, she's an inspiration.

Great news that you've got a perfect match for the transplant. I wish you and your husband the very best of luck with the transplant.

Would be nice to meet - I'm usually at Addenbrookes at the weekends as I live a long way away, though my Dad's there all the time.

I understand that this leukaemia can be cured - and that's what I hang onto. Stay strong, Jools.

Ros x

hi ros ive been looking for you at the hospital my hubbys in room1 hes had transplant all went well but his immune system rock bottom im staying a mile away in our caravan very handy. hows your mum doing have they mentioned a transplant, honestly ros its not as bad as you think i videoed it of course stuart has the bad throat and is on a drip but that was all expected. yes this can be cured fingers crossed it is a high risk one my hubby has got, but he has responded so well to the treatment nd you must remember every one is different and dont listen to percentages i mean there was a 1 in 4 chance of my hubbys sister being a match and she was so never give up hope to see you weve got the lap top here so ill keep checking for a reply take carexxxx

Hi Jools,

Mum was transferred to Papworth as she had complications as a result of the chemo and had to have an operation. She's out of hospital now and at home we're all much more positive now she's at home.

We're waiting for a bone marrow test due tomorrow to see how she has responded to the second round of treatment. No mention of a transplant yet.

I am proud of how brave she has been.

So pleased your husband responding well to the transplant, i hope he continues to get better.

And hope the nice weather continues so you have a pleasant stay in your caravan.

Best wishes,

Ros

aww bless her shes going through it but there is light at the end of

the tunnel its a long job though. stuart should be out in few days but will have to come back a lot for checks. i wish your mum all the best and i will keep in touch ros take care jools

hi ros aww your mums been through it bless her but all sounds well now. its a long rocky road i know ros but there is light at the end of the tunnel. stuart should be allowed out in a few days so thats great its amazing what they can do. hope all goes well for your mum ill stay in touch.

take care,
jools