Shell shocked New boy 2 site - Wife just diagnosed with CML ..

i am so very sorry to hear about your wife, i really can't offer you anymore than support as i know very little about leukemia, but my fingers are crossed that you have a healthy baby and that your wife overcomes this
lots of love
Alisonxxxx

Hi

So sorry to hear about your wife. I am afraid I don't know much about your wifes condition but I feel sure that there will be somebody on this site who does and will help you.
In the mean time you will get all the support you need from this site

Tina

Hi,

Just thought Id let you know my story. I was pregnant with my third child and last oct I also found out that I had CML. To put your mind at rest. I had a healty boy in March who is doing really well. I had to go through lukophresis while pregnant x and now im on glivec. Im doing really well. All my counts are back to normal. So all I can say is, be positive. Think and believe for the best. There is so much the doctors can do for her. Im 27 years old. x P.S. let her tell you everything shes feeling.

HI, my husband was found out by chance too, when he gave blood for the 45th time!! How amazing that Hannah has even closer experience. I would add that you should both tell each other how you're feeling; we agreed to right from the beginning and although it's tricky when you'll be feeling different things sometimes, honesty really is the best policy. It's not that you find many answers, just that you can hold each other and be stronger together.

Hi, I'm afraid I too can't really help with your specific issue, as I'm still new to the whole process, and to this site.

I don't know if you've tried the forums, but they are divided into specific cancer types. And I've found blogging helps not only in getting worries of your chest, but also in getting people's opinions and comments.

I just wanted to say stick around on this site. Everyone is so supportive and understanding, and it's a great way of voicing fears you maybe don't want to burden your loved ones with.

In my case, I'm the patient, but am more worried about how my boyfriend is dealing with it, than myself.

So all I can say is keep talking to people and know that there's alot of people on here that genuinely care. And feel free to contact me if there's any tiny way I can help.

Best wishes and loads of love to you and the family.
xSim

Thank you Alison .... Learning more day by day ,,,,, Certainly reassuring not we are not alone or unique in our problem

Take Care

Lee

Hi Hannah , Thank you so much for your message.. I cannot believe the amount of people who have discovered CML via pregnancy or giving blood.. Unfortunatley , we have had to have to make a really difficult decision and go through a termination... Needed to start treatment fairly quickly and after seeing 3 consultants , was the correct decision logically - but worst emotionally...

Slowly coming to terms with both things ,, but so much to take in ....

Glad to her you are doing well ...

Regards

Leex

Hi Clarity , Thanks for your message .... Blimey - 45th pint of blood - What a way to find out !!! ..

Your right about talking things through .... I have never been the best at this , but it really helps , especially as there is so many things to discuss and take in at them moment

How is your husband getting along ?

Lee x

Hi Sim , Thanks for your message ...

I know my wife is worrying about me also ,, So can understand your thoughts here.. Your right about the sites , they are really helpful , especially now I know where to look after receiving full diagnosis..

I hope you are getting along OK ?

Regards

Lee x

Just a very short note to say that I am thinking about you both at this time, and wishing that the treatment will be as successful as possible. xxx Penny

Hi Hubba
Just echoing Penny's wishes. My thoughts are with you both good luck with all your tests. Keep in touch
Tina xx

Hi Hubba, i'm new to this forum but came across yopu post, i was diagnosed in 2004, nine months later found out i was pregnant, nine months later- beautifull healthy baby girl 8lb 5 oz :D if u have any questions feel free to ask i'll do my best to answer.

good luck

I too have only just found this site and logging on tonight saw your post. I can't help with information on your wifes condition but see that others can, just wanted to send you love and hugs of support, what a dreadful thing for you to have to come to terms with losing your little one at the same time as having to deal with this illness. Together you will get through, good luck to you xx

So sorry that this awful thing is happening to you and your lovely wife and family. Its so sad having to make those sort of decisions, I don`t understand why some of us in this life have to face these things, all I do know is that you will find the strength to come through it, and I pray that happier days will be ahead for you both. xxx

Hubba just read that you's had to have a temination, i am so sorry, hadn't read that when i posted. thoughts and prayers are with you
xx

Hi,
My man is well at the moment, he has no hair but that's expected! He's actually working full time between treatments, so you can see how people can live ok with these weird 'treatable but not curable' things....he has myeloma, not CML. I've just been brave (or braver than usual) and started a new topic on the myeloma forum about stem cell transplants. Keep in touch everybody, we all keep thinking about you! Hope you all have a good week,

Hi new boy,

What a terrible shock for you both. I'm a lot older than your wife, I'm 63 and I have chronic myeloid leukaemia. It's a weird thing as there aren't really any symptoms. I found out I had it after a routine blood donating session. Thank God I went to give blood - I'd be dead now if I hadn't. So thank God your wife had a routine blood test! How lucky!

Things may not be as bad as you think. Your wife is probably young enough to have a bone marrow transplant (I think they do transplants for CML) and there are lots of good drugs about now. I've had it for 4 years and am on Glivec (sometimes called Imatinib). I just take one pill each day and my blood count has been normal for over 2 years.

When I was diagnosed, my white cell count was pretty horrendous, over 400, so I had to go into hospital and have chemotherapy to bring that down (only pills, not too bad) and then I had a couple of units of blood and they sent me home. This was January 2005 and I haven't been in since. I just attend outpatients for blood tests etc.

I've also been on a vaccine trial, results of which are due later this year.

So although you must be terrified (I know I was), don't despair, there's a hell of a lot they can do.

If you want to email me, my email address: shelaghnugentswords@hotmail.co.uk